Ethics@noon: Alfred Lane (School of Medicine) "Is death better than this life?: Ethical Decisions in Severe Genetic Skin Diseases"

Your skin is the most admired and ignored organ on your body. Skin becomes extremely important when there is a problem. What should you do when you are a parent of a child with a severely deforming and painful skin disease? Are you compelled to enroll your child in any research program that offers hope? How much risk is too much? What is the correct action to do?